MD Campaign
Official Muscular Dystrophy Campaign of the United Kingdom. The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders.
FSH-Group
This is the main fsh support group of the United Kingdom. The FSH-MD Support Group aims to improve the quality of life
for all those with FSH and those who care for them. They offer support and encouragement to families and individuals who have FSH. They also hold a conference every year, involving demonstrations,
guest speakers and discussions.
Fshers
Another fsh support group in UK.
Amis FSH Europe
FSH support site based in france.
Newcastle Muscle Centre
The Muscle Centre at Newcastle upon Tyne is one of three centres in England for the diagnosis and management of inherited muscle diseases which are supported by the British Muscular Dystrophy Campaign. The Muscle Centre runs clinics in Newcastle and at various locations across the North of England.
Professor Kate Bushby and Professor Volker Straub head the Centre and hold joint appointments between the University of Newcastle upon Tyne and the NHS. Their time is split between research and clinical commitments, both of which are mainly focused on muscle disease.
NMC
Neuro Muscular Centre.
The Muscular help Foundation
The Muscular Help Foundation [MHF] is a focal point for accelerating the eradication of muscle disorders through education, promoting awareness and generating funds.
MDA
The official Muscular Dystrophy Association of the United states of America.
FSH Society
FSH Society of America. Defiantly worth checking out, has tons of information and a large community including a chatroom and bulletin board.
Pacific Northwest Friends of FSH Research
Pacific Northwest Friends of FSH Research was formed to raise money for research into a cure or treatment for Facioscapulohumeral Dystrophy, or FSHD, by the family and friends of Brian Colella.
paypal